Stories from the ARVD/ARVC community
I guess it all started when my mom was diagnosed with hypertrophic cardiomyopathy in early 2012. I was 32 at the time. Her cardiologist wanted to do genetic testing on my sister and me, and both tests came back negative — great! Except my echo (echocardiogram) and EKG (electrocardiogram) showed I was having a lot […]
I was diagnosed with ARVD (arrhythmogenic right ventricular dysplasia) when I was 21 years old. I went from playing in a collegiate tennis match to having an ICD (implantable cardioverter defibrillator) implanted 24 hours later. There were clues along the way that something was wrong, but what seeming healthy 21 year old thinks they actually […]